Consent Vault

Author name: Emerson Borsato

New Patent – Permission Monitoring and Data Exchange

Consent Vault, Inc receives issuance of a patient for a groundbreaking AI- and machine learning–enabled consent management system designed to accelerate data-driven insights, data enablement and governance.  The current application of this patented technology empowers patients to define how their clinical, genomic, and real-world data may be used—specifying access by data type, purpose, authorized parties, […]

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Mapping the Maze of Real-World Data in the Community Oncology Setting: Why Oncology Data Mapping Is So Complex 

“In oncology, every data point matters in clinical research—and so does every step to make it usable.”  As oncology moves deeper into the era of precision medicine and data-driven care, one thing becomes clear: the value of meaningful insights depends on the quality and structure of the underlying data. Unfortunately, in cancer care, data doesn’t

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Minimizing $50-60B loss in annual failed Cancer Clinical Trials by Optimizing Patient Identification and Recruitment Strategies

Clinical trials are crucial in the development of new cancer treatments, but the staggering loss of $50-$60 billion annually due to failed oncology clinical trials emphasizes the need for improved oncology patient identification and recruitment strategies. A recent review found patient participation in oncology trials to be low, ranging from 2% to 8% of adult

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Florida imposes criminal sanctions for violation of certain health privacy rights

Florida imposes criminal sanctions for violation of certain health privacy rights Florida took data and health privacy rights a step further and passed HB 833 the Protecting DNA Privacy Act which went into effect October 1, 2021, which “establishes new criminal offenses applicable to persons” in violation of HB 833. This new law is designed to  a) extend

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Tissue and DNA material used without informed consent and authorization leads to lawsuits

Tissue and DNA material used without informed consent and authorization leads to lawsuits On the 70th anniversary of the death of Henrietta Lacks, her family has filed a lawsuit on October 4, 2021, against Thermo Fisher Scientific for using cells taken from Henrietta Lacks while a patient at Johns Hopkins Hospital in Baltimore without her

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Generative AI in Genetics, Genomics and Systems Biology: Advancements, Challenges, and Ethical Considerations Regarding Patient and Family Privacy

What is now public knowledge is that since 2008, through a computational method known as reverse genetic engineering, an individual person can be identified by analyzing and comparing the millions of combinations of the individual’s DNA. Moreover, an individual’s DNA can be compared against the millions of combinations of a population of individuals to determine

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Implications of Informed Consent: Lessons Learned from Henrietta Lacks on Patient Rights, Medical Ethics, Transparency and Research

The story of Henrietta Lacks first came to light in the early 1970s, long after her cells were taken without her knowledge or consent. The first public mention of Henrietta Lacks and her cells was in a 1976 article

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